The STANDARD

We have an audacious goal to harmonize data collection worldwide.

Overview

Currently, there is no standardized method to capture women’s reproductive health experiences over their lifespan—an issue that limits the reproducibility and scale of research efforts and leaves the field hungry for a universal approach to collecting data relevant for women’s brain health. The WBHI is developing a standardized reproductive health history questionnaire, designed with the goal to improve the rigor, reproducibility, and scalability of women’s health research.

The survey is built on collaboration, with input from world leaders and field experts in women’s brain health, capturing key details across the reproductive lifespan, from the menstrual cycle to hormone-based medications, pregnancy and postpartum health, menopause, and more. A comprehensive piloting process, guided by UX/UI experts, and translation into world languages will ensure increased global accessibility of the survey.

If adopted broadly, this standardized approach could harmonize data collection worldwide, enabling the kind of large-scale, consortium-driven “big data” efforts required to tackle the most pressing and complex questions in women’s brain health, in a way that’s evidence-based, harmonizable, and poised for global impact.

Big Data will lead to Big Discoveries

Asking the same questions in the same way, allows for harmonisation, both between large-scale “big-data” collection efforts, and small-scale bespoke studies.

Big-data can be leveraged in models to boost prediction in smaller data-sets.

Chopra et al., (2024) Science Advances